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Comprehensive resources that offer a little bit (or a lot) of everything
NEW YORK STATE OFFICE FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES
OPWDD offers individualized, person-centered supports to children and young adults aged birth to 21 who are OPWDD-eligible with a qualifying diagnosis. OPWDD services can be provided in addition to supports received through Early Intervention (EI), the education system, and the Office for Children and Family Services (OCFS), which are the primary systems serving children with disabilities in New York State. These systems work together to ensure children have the supports they need to build on their strengths and overcome any challenges they face.
In addition, OPWDD offers services to family members to help them provide supports to their loved ones. When a referral is made, OPWDD regional staff can work with the family to learn about the child’s support needs and discuss what OPWDD service options may be of benefit.
We give young people with disabilities from birth to 26 and their families the knowledge, confidence, and skills they need to make informed decisions, effectively access and navigate systems and services, and the ability to advocate for themselves and other young people.
We actively work to change the conversation about people with disabilities and reduce the stigma associated with disability. We create access to educational, employment, and recreational opportunities for young people and advocate with families for meaningful inclusion in the broader community.
We are the New York State-funded Special Education Parent Center for New York City’s four largest boroughs, a member of the federal Parent Training and Information Center (PTIC) collaborative for New York City and Long Island, a federally-funded Community Parent Resource Center (CPRC) for the South Bronx and northern Manhattan, and the lead partner for the Rehabilitative Services Administration PTIC for New York City and upstate New York.
Each year, AHRC New York City touches the lives of over 15,000 individuals with intellectual and developmental disabilities throughout the five boroughs. The array of services offered by the organization is unsurpassed.
The organization that created the first schools, workshops, day treatment programs and community residences, continues to meet the needs of its individuals with intellectual and developmental disabilities. We offer individuals a wide range of programs, services and supports tailored to meet their specific needs.
Today, with a membership comprised of thousands of individuals – primarily persons with intellectual and developmental disabilities, their families, friends and professionals in the field – AHRC New York City is one of the largest nonprofit organizations in the city. It is governed by a Board of Directors, two-thirds of whom must be relatives of persons with developmental disabilities, working together with a staff of dedicated professionals.
WRIGHTSLAW YELLOW PAGES FOR KIDS - NEW YORK
Find educational consultants, psychologists, diagnosticians, healthcare specialists, academic tutors, speech language therapists, advocates, and attorneys. You will also find government programs, grassroots organizations, special educations schools, and parent support groups.
NATIONAL BLACK DISABILITY COALITION
The National Black Disability Coalition (NBDC) is the nation’s organization for all Black disabled people. Membership and partners includes Black disabled organizations, disabled people, parents, family members, faith based, non-profits, and academic and policy leaders.
Founded in 1990, in response to the need for Black disabled people to organize around mutual concerns, NBDC is dedicated to examining and improving; community leadership, family inclusion, entrepreneurship, civil rights, service delivery systems, education and information and Black disabled identity and culture through the lenses of ableism and racism.
BIG APPLE ORANGES
It’s hard enough hearing the news about your child and getting the diagnosis. It rips you apart and often tears families apart. And organizing your plan of action may be overwhelming if you haven’t addressed the myriad of emotions you are experiencing. But the sooner your child gets help, the better the outcome. Every day is important for our precious children, and they shouldn’t have to wait for the assistance they need and deserve to survive and become (hopefully) contributing members of society.
We knew many families who went through this before us who helped us navigate these murky waters. And the constancy of love, commitment, and guidance of our son’s teachers, therapists, tutors, baby sitters, care providers, respite workers, and case managers all contribute to giving him the tools he needs to lead a self-reliant, independent life one day. We couldn’t have gone this far without their unrelenting passion and dedication.
But for those of you just starting this journey, Big Apple Oranges is here to help. You are definitely not alone. The daunting task of getting the help your child needs can be made easier with this guide so you can use your time more effectively to love, nurture, and be with your child rather than trying to figure out the system. This also frees you to take care of yourself and other family members which you should never forget to do. There’s help for you within these pages too. When you go through this site, please log on to the websites provided for a lot more detailed and helpful information.
This site is also a forum for you. If you have questions, ask them. Someone who went through it will advise you. If you have a teacher, therapist, school, case worker, etc who has bent over backwards for you, or has disappointed and failed you, let us know. Going public with this can make a difference. People take notice. And our hope is to help you help your child and improve the system that they rely on at the same time.
HeartShare Human Services of New York nurtures and empowers children and adults with intellectual and developmental disabilities, including Autism Spectrum Disorders, through education, life skills and vocational training, employment, residential, case management, recreational, individual and family supports, and health care services. HeartShare affiliates include The HeartShare School, which offers quality education and therapies to children with autism, HeartShare Wellness, which provides therapies and counseling, as well as case management to those with developmental disabilities and people with chronic conditions, and HeartShare St. Vincent’s Services (HSVS), which supports children, adults and families living in crisis due to experiences with poverty. Since its founding in 1914, HeartShare has expanded its reach to over 100 program sites in Brooklyn, Queens and Staten Island, as well as to 60 of the 62 New York counties through energy grants to low-income families. HeartShare is proud that 90% of all revenue goes directly to its programs and services. HeartShare is accredited by the Council on Accreditation of Services for Families and Children and is a Better Business Bureau Accredited Charity.
MY CHILD WITHOUT LIMITS
MyChildWithoutLimits.org is an authoritative early intervention resource for families of young children ages 0-5 with developmental delays or disabilities, and professionals looking for a single, trusted, aggregate source of information that relates to their needs and interests.
Extreme Caregiving by Parents who care for children with special needs, particularly those whose children have multiple disabilities or intellectual delays, are pioneers in home health care and caregiving, yet their experience and expertise are rarely recognized. This book collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. Parents raising children with special needs often must devote all of their resources, both tangible and spiritual, to providing care long into their offspring#65533;s lives. Their experience exceeds the usual parameters of parenting. This book examines all of the facets of their parenting role, from the care they provide to the challenges they face, and questions many assumptions. It presents parents as neither emotional wrecks nor overburdened saints, but as moral individuals struggling to find their own way through relatively unexplored territory. This book begins to recognize the moral consequences of providing long-term care for a child with complex needs. Using a virtue ethic framework, it isolates the various tasks involved and evaluates the moral demands placed on the parent attempting to perform them. On their journey to provide for their child the best life possible, parents must alter their own lives and attitudes, and become the sort of person who can perform the necessary caregiving. Raising a child with special needs demands from the parent a reassessment of their personal and social lives. Some of the consequences, such as the presumed emotional and physical burden of constant attentiveness and the numerous unexpected responsibilities, have been reported previously. But the need for competence, which drives an acquisition of medical knowledge, has not previously been analyzed, nor has there been recognition of the enormous moral task of encouraging identity formation in a child with intellectual delays or disabilities. For a child who cannot attain independence, parents must continue to provide care and support into an uncertain future.
Publication Date: 2017-11-09
Grandparenting a Child with Special Needs by When a new baby is born into a family, grandparents are excited about having a baby to enjoy and love. If the child is born with a disability, it can be difficult to know how to react and how best to help the child and the family as a whole. This book provides guidance on how to grandparent a child with special needs and give every grandchild the love and care they deserve and parents the added support they need. From coming to terms with a diagnosis, to helping with the transition from adolescence to adulthood, the book gives clear advice on grandparenting a child with special needs throughout their life. The author covers the medical, emotional and practical aspects of being a grandparent and explores important issues such as researching resources for specialized care, accessing financial and legal resources and, just as importantly, how to have fun and spend quality time with a grandchild with a disability. The book also addresses how to handle the diagnosis of a serious accident or progressive illness. Grandparenting a Child with Special Needs is a unique guide for grandparents keen to make a difference to the lives of their children and their grandchildren.
Publication Date: 2009-04-15
Identifying Special Needs by Drawing from her experience as an educational psychologist, and special education teacher, Glynis Hannell offers guidelines to help teachers quickly recognize and categorize the specific characteristics of developmental disorders, autism spectrum disorders, emotional-behavioural disorders, specific learning disorders, sensory impairments and other forms of special need. The practical checklists and resources in this fully revised new edition help both classroom and specialist teachers to #65533; Screen any student for possible special needs Understand the causes and characteristics of various types of special needs Request and prepare for an intervention or IEP team meeting Link classroom observations to diagnostic criteria used by specialists Create accurate and comprehensive profiles for individual students Record each student#65533;s unique pattern of development within a special needs #65533;label#65533; Quickly record important information and avoid writing time-consuming reports Coordinate information from several teachers or professionals Monitor progress and track significant changes over time Involve parents in observing and discussing their child#65533;s pattern of strengths and challenges Plan effective, inclusive intervention in the classroom setting Follow up with recommended further reading, websites and professional references #65533; Recognising special needs and identifying each student#65533;s unique profile of positive attributes and difficulties enables teachers and other educational professionals to ensure that all#65533;their students receive the support they need to succeed.
Publication Date: 2013-12-19
An Introduction to Young Children with Special Needs by AN INTRODUCTION TO YOUNG CHILDREN WITH SPECIAL NEEDS offers a thorough introduction to the educational policies, programs, practices, and services specific to infants, toddlers, and preschoolers who demonstrate delays and disabilities. It also offers information about youngsters who exhibit signs of being at-risk for future programs in learning and development. Through a host of proven learning techniques, a website, and additional related resources, readers are guided to a full understanding of important theoretical and philosophical foundations in serving children whose learning is delayed. These include authentic assessments, cultural sensitivity and competence, activity-based interventions, and developmentally and individually appropriate practices. The book emphasizes instructional strategies necessary for creating inclusive learning environments, and offers recommendations throughout for using technology in the learning environment.
Publication Date: 2013-01-01
More Than a Mom by Solid, practical advice on how to cope with the many personal challenges mothers of children with disabilities face at home, at work, and within themselves. A "how to" guide for living a balanced, fulfilling life with advice from moms who have been there -- this includes the authors' experiences and insights, and tips from dozens of other moms of kids with special needs who filled out the authors' questionnaire. Jam-packed with useful steps you can take to make your life more manageable, and ultimately more fulfilling. The book addresses 2 main concerns: Taking Care of Yourself (at home physically, emotionally, practically, spiritually/psychically); Taking Care of Business. Target Audience: Mothers of children with developmental disabilities (e.g., Down syndrome, autism, cerebral palsy, etc.) or chronic health concerns.
Publication Date: 2006-05-01
...and more books
The Parent's Guide to Occupational Therapy for Autism and Other Special Needs by With the help of this handy guide, you can bring tried and tested occupational therapy activities into your home and encourage your child to succeed with everyday tasks while having fun in the process.This expanded edition of the award-winning book includes new advice on toilet training, coping with changes in routine, repetitive behaviors, self-regulation and much more. The simple explanations and easy exercises will soon make daily activities enjoyable and productive.
Publication Date: 2016-02-21
The Parent's Notebook by The Parent's Notebook offers opportunities for parents, siblings, caregivers, friends and other important family members to learn new ways of managing challenges related to raising a child with developmental disabilities and special health care needs. Surprisingly, there are very few books that are specifically written to help parents, who often find themselves struggling, and suffering alone, without the benefit of camaraderie, connection, and understanding. So I offer my stories, opinions, and resolutions to you in the hope of bridging this chasm. Parents and families should know they are not alone, that others feel similarly, and that there are solutions to the difficult situations we all encounter.The circumstances I have written about in The Parent's Notebook include the following: An unexpected future and how to come to terms with this; the overwhelming feeling of uncertainty about what, if anything, is really wrong with our child; wanting to be understood by family, friends and the general public and realizing that this is not the case; family balance and handling increased demands of medical and educational processes; the loss of the feeling of being a "typical" family; losing family privacy when in-home supports arrive with their curious lack of boundaries; the difficulties of comparing one child to another and the outcome of that; feeling victimized by the circumstances of having a child with special needs; having to advocate for your child, family and yourself through the medical and educational systems; protecting yourself from fraud and impatient purchases that you think will solve a big problem for your child.The writing and arts activities in this book are based in Creative Arts Therapy. I became a Creative Arts Therapist after receiving my Masters Degree from Wesleyan University in 2003 and used Creative Arts-endorsed activities for years to help me work through personal struggles. My favorite activity was writing and drawing in my notebook every day. It gave me the ability to release my feelings in a productive manner and turn emotional turmoil into an art project. In this book, you will find guidelines for writing and drawing in a notebook along with suggestions on how to begin. More Creative Arts activities are listed at the end, with instructions, objectives for each project, plus supplies needed. And the best part? These activities are actually fun to do and offer lasting benefits for the whole family. The larger message in this book is that raising Christian filled my life with significance; something beyond ordinary life. He showed his love and happy spirit to everyone he came in contact with. He was a person overflowing with love. I encourage readers to write about their child's significance in their life and the lives of others that are in contact with that child on a daily basis, remembering that their child is a gift to them and this gift is theirs to love and appreciate.
Publication Date: 2014-09-02
The Special Needs Parent Handbook by The Special Needs Parent Handbook provides practical advice for any parent of a child with special needs, for caregivers of children with mild learning disorders to those with severe cases of autism, cerebral palsy or other disabilities.Learn more about:* Hiring babysitters and free respite help* Finding the best and kindest doctors* Keeping the family together* Taking care of your health* Strategies for inclusion and recreation* Being a strong advocate for your child* Planning for the future
Publication Date: 2012-04-13
Supportive Parenting by When Jan Campito first entered the world of special needs, she trusted the experts to tell her what was wrong, and how to proceed to help her children. Here she was, an articulate, well-educated person, usually confident in navigating whatever situations were required, and yet she became passive and trusting when it came to assuming people would tell her what was wrong with her children's development and what to do to help them. As she realized more and more that no one else was stepping into the lead position to obtain appropriate help for her children, she realized that she needed to take on that responsibility. Since then, she has learnt to take an active role in advocating for her children, and helping meet their needs. From procuring evaluations, to understanding what the diagnoses mean, to selecting therapies and therapists, to following through on therapies at home and targeting needs to be addressed, to helping formulate IEPs, and to monitoring and intervening in their school settings, she has become a comprehensive advocate for her children with special needs, and in this book Jan shares with other parents some of her experiences and some of what she has learnt in the process.
Publication Date: 2007-06-15